Aug 16, 2022
This GOLD Nugget episode sees Helena reflect on some of the insights offered by Laurence Woollard, haemophilia patient advocate and Founder and Director of On The Pulse Consultancy. In these clips, Laurence shares his personal experience of living with haemophilia and his journey into patient advocacy, the knowledge gap between the pharmaceutical industry and patients living with rare diseases and more.
If you’re interested in learning more about the topic areas discussed in this episode, check out the following content:
Laurence’s full episode: https://www.emg-gold.com/post/podcast-digital-solutions-cell-and-gene-therapy-and-haemophilia-in-focus
The progress and pain points of patient centricity: https://www.emg-gold.com/post/the-progress-and-pain-points-of-patient-centricity
The rare disease disparity: https://www.emg-gold.com/post/the-rare-disease-disparity
BioMarin supports haemophilia documentary initiative https://www.emg-gold.com/post/biomarin-supports-haemophilia-documentary-initiative
Roche renews haemophilia pledge https://www.emg-gold.com/post/roche-renews-haemophilia-pledge